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Newsletter

Send
us your tale.
Survivor Tales
Where do we go from here? The
head Injury / Brain Trauma recovery road seems so long. We must resist the temptation to fall into a victim
role. Victims cannot help themselves or others.
Sharing your TBI success stories can
inspire others to action. Your strategies can be useful to others who are
traveling the Brain Injury recovery road. Please consider sharing your positive experiences of
overcoming obstacles in your TBI recovery path.
Often people who have
sustained and survived brain injury are able to recognize the differences that
they must face after their traumatic brain injury. When our brain is injured in any way, we
experience changes and we must make adjustments to accommodate the changes or
differences in our lives. Sometimes these may be minor and we are tempted to
ignore them. Often, we can navigate life's twists and turns by developing
strategies to overcome the changes. Thousands of people sustain so-called
"minor" brain injuries every year. Sometimes these injuries can cause severe
cognitive difficulties. Many of these people do not seek
medical treatment because of several factors.
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Lack of Medical Insurance/funding
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Unaware of the consequences of head trauma
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Misunderstanding of concussion
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Negative connotations associated with Brain Injury
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Misperceptions of people in authority (parents, teachers, care givers,
coaches etc.)
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Misleading television and movie information
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Lack of services (rehabilitation, transportation, etc.)
Oftentimes surviving brain injury is like treading new ground where nothing
is the same in our lives. It can be as if the person who has survived has been
born again, not of human means but of spiritual.
Brain Injury can cause an
individual to experience changes in every aspect of a person's existence.
The road we are traveling might seem to be narrower
than it was previous to our injury. Some of us were actually spared from the grips of
death. This fact can bring us to a deeper appreciation for life, regardless of
our current circumstances. Awaking from a near death experience can have a
profound effect on the way we live each moment after returning.
As we begin to recover, we may find that regardless of the progress we
believe we are making, we remain in the same place. For some people, running
fiercely is the only option. Like a greyhound chasing an ever illusive rabbit
around a track, some people may try to regain some form of what was
once familiar to us. Some people try to return to their lifestyle, acquaintances and employment, only to find that
they no longer
fit in. The illusion of "life" as they knew has vaporized. It is gone, never to
return in its original form. Some people like it that way. Other people fight
it. Change is constant.
Brain injury has a way of accelerating adjustment. Usually moving forward in a
proactive manner is critical to establishing ourselves in society productively.
Still other people who survive brain injury are unable to recognize their
deficits and cognitive impairment. These individuals may require ongoing
supervision to help them adapt to their neurological impairment until such time
as they are able to develop compensatory strategies.
Not so Minor
At the other end of the spectrum are people who remain in a persistent vegetative
state. Most often, they must stay dependant upon others and sometimes upon physical
life sustaining support systems. Some people have regained consciousness and
overcome barriers to their recovery after a lengthy comatose period, which gives
hope to loved ones.
Surviving brain injury is different for everyone. Nevertheless, some of the
aspects of surviving brain trauma cross all lines that may otherwise separate
people.
It is time to move forward in an empowered mindset, for this is the true
nature of survival. Otherwise we will slip into an eternal coma, regardless of
whether or not we are cognizant of our surroundings. The people who have
sustained and survived brain injury that are able to articulate their
experiences can enlighten society. The folks who are able to write their
experiences down for other people to read, can be
a voice for people who are unable to share their ideas.
The care givers, parents, grandparents, spouses, children, friends and all
others who have been affected by brain injury in their lives can help others
gain a deeper understanding of brain injury, surviving brain trauma, overcoming
traumatic brain injury and recovering from traumatic brain injury.
Bring your tales of surviving brain injury
here. Write to us at Survivor
Tales to share your experiences. Write
down your stories. Describe your frustrations. Do not be concerned with
being an English major or a novelist. Just get your stories written down. Record your experiences, positive and negative. Tell how you found services and
information. Jot down
the information that was helpful to you. Describe
your emotions and those of the people around you. This is important. If you
will gather this information and send it to us, we will get it to others. This
is not just for the people who actually sustain and survive a brain injury, but
also for the people who survive with them. We can edit your writing for grammar
and spelling. Send
it in and we can make it available for others to read. This is another way
that we can help you to help other people. You have had to dig and struggle and search for
the help that you found.
You
can share your experiences. While we cannot promise to publish
everything from everyone, we will share as much as we possibly can.
Every person has
experiences that may be useful to another person if shared. Sharing common
experiences can bring healing and a deeper understanding to both the person who
shares and the person who receives the information.
Tell us about your frustrations.
Explain the lack of any services that you have discovered. Tell others what
worked or is working for you and what has not worked.
Stop back often for hair raising adventure and inspiring stories
of courage.

Write us your
tale today!
Revised:
August 30, 2005 08:36 PM
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This
site has been designed and is maintained by
John
Pistorius. Persons interested
in making in kind donations
can
click here.
Copyright
© 2002-2004
John Pistorius. All rights reserved.
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